PBC:
So many people don't understand this disease. If you know what you are dealing with its easier than dealing with the unknown. I was lucky because I found good Drs and live in the state of NC which has the research triangle. I tried to scan and download some of the information I have but I am technology challenged so here is some of it. If this helps one person then it is always worth it.
PRIMARY BILIARY CIRRHOSIS is a disease of the bile ducts inside the liver. It progresses slowly so patients may lead active, productive lives for many years. In PBC, the bile ducts in the liver become inflamed. The inflammation is chronic(constant over a long period of time),and causes scaring that eventually blocks and destroys the bile ducts.
This condition interferes with the proper drainage of bile, so the bile backs up into the liver and into the bloodstream, causing various symptoms.
Eventually the liver itself becomes badly damaged and scarred.
This is known as cirrhosis.